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The Faces of Breast Cancer
In recognition of Breast Cancer Awareness Month The Regional Cancer Center
produced The Faces of Breast Cancer calendar in 2004. Twelve women were chosen to be
featured from among the Center's patients. Here are their courageous
stories. As cancer care providers we gain inspiration from each and every
patient we encounter. We are proud to have been partners with these 12
women, to be part of their stories, and to be sharing them with you. We
salute them and their families and all of our patients who find themselves
in the unique challenge of a cancer diagnosis.
Orinda Pulice
Dr. Kathleen
Erb
Patricia Liebel
Shirley Martin
Barbara Power
Margaret Reinwald
Michele
Latzo
Charlotte Anderson
Barbara Fohl
“Peep” Brereton
Karen Brzuz
Connie Falvey
Orinda Pulice
A cartoon shows Frank and Ernest driving along and encountering two signs: "Highway of Life" and "Slow-Ironic
Twists Ahead." In agreeing to participate in this calendar
project, Orinda Pulice, a volunteer here at The Regional
Cancer Center, happily talked about a survival of 22 years
since her diagnosis of breast cancer. The irony enters in
because Orinda has just discovered another cancer in her
other breast. Confident that she can survive this new cancer,
she is beginning her journey once again through surgery
and treatment. The courage of the human spirit is evident
in her!
At age 46, Orinda's doctor found a lump and ordered a biopsy. Orinda became actively involved - she did extensive
reading on procedure options and associated risks. She
chose a lumpectomy. However, the lymph node dissection
showed extensive involvement and her chances of survival
were estimated to be 1 in 5. "I decided I had too much to
live for - and too much to do! I had a husband and six
young children." So she began an aggressive battle to
conquer her disease. And "conquer" she has!
"My life was never the same after diagnosis. Things that
once seemed important are now trivial." What was most
important was the love and support of Don, her husband,
her children and many friends. She endured 30 radiation
treatments, a radium implant, nine months of chemotherapy
and 18 years of continuing drug therapy. One lasting and
difficult side effect has been lymphedema, a swelling in her
arm from damage done to the lymph nodes during radiation.
The lymphedema has progressed over these years, resulting
in very little use of her arm. "Surgery and radiation
treatment have progressed in the last 22 years; very few
women have to battle this specific side effect in any great
measure," she cautions other patients. At the Center, Orinda
interacts regularly with patients and their families. When
appropriate, she shares her story with women recently
diagnosed with a breast cancer. "Yes," she says to them if
facing chemotherapy treatment, "your hair does grow back!"
Among her six children are three daughters. She worries
that she may have possibly passed on a gene that increases
their risk for breast cancer. She and they are most attentive
to regular check-ups and self-exams. "Every woman needs
to make a habit of checking herself monthly - it only takes
10 minutes!"
As this calendar is in production, Orinda is beginning an all-too-familiar journey once again. It is difficult, but she is
very confident that she will look ahead to another 22 years
of restored health when this battle is won.
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Kathleen Erb, MD
"Being a patient has been quite a learning experience. I now appreciate even more what patients go through when
faced with a diagnosis of cancer," reflected Dr. Kathleen
Erb. Two years ago, Kathleen Erb, MD found a breast lump
doing self-exam. Initially, she wasn't too concerned since
she had experienced something similar previously that
turned out to be a cyst. But a sonogram revealed a solid
mass, which called for a biopsy.
Dr. Erb is a well-known Erie surgeon, chosen often by women finding themselves in need of surgery. Suddenly,
she had to make a series of decisions about her own care.
Because of a desire for privacy and some measure of
comfort, Dr. Erb went to Pittsburgh, where she initially
trained, for the biopsy and subsequent surgery. She
experienced delay between the biopsy and lumpectomy,
mainly because of her very busy schedule and commitments.
"I knew, intellectually, that the wait would not compromise
my care. The lump was small. As soon as possible, I went
ahead with the surgery and chose a partial mastectomy and
sentinel node procedure that, fortunately, showed no lymph
node involvement.
"The big temptation is to be your own doctor, which is probably true for most physicians. I found I had to turn it
over to and try not to second-guess my doctor. I chose a
lumpectomy and node biopsy with radiation to follow the
surgery. These decisions were fairly easy for me to make;
however, the question of entering into chemotherapy was
more difficult. Again there were choices to make - to have
it or not, which protocol of medications to choose, and
attempting to measure the side effects of the various choices.
I knew that, if at any point there would be a recurrence, I'd
probably think how foolish I was not to have chosen
chemotherapy. Ultimately, I went ahead with chemo
treatment."
She continued, "My husband, also a physician, was supportive as were my sons. He and I agreed easily on some
of the choices before me and discussed all aspects as I
worked my way through the process. Although men tend
generally not to be so verbal, they were very aware of what
was occurring. Also, I received great comfort and benefit
from the many well wishers and prayers of my patients,
friends and associates."
What message does Dr. Erb have for women? "Aside from doing self-exams and having regular mammograms, have
some awareness of your own personal risk. If you find
yourself in the circumstance of having a breast cancer, it is
important to gather information about your treatment
options, and approach your choices in a fairly thoughtful
manner, considering your own life circumstances."
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Patricia Liebel
To many Erie natives, Patricia Liebel's name is familiar. Much of her career was spent working closely with former
Mayor Tullio. Since then, she has worked at Mercyhurst
College as Director of Alumni. Pat is committed, driven to
succeed. This positive attitude and optimistic outlook were
evident in her personal struggle with breast cancer as well.
It was in 1995 that Pat was diagnosed. "I was devastated at first," she reflected. But soon after diagnosis, she made
the choice of a mastectomy, noting, "It was the right choice
for me. I don't think of myself as disfigured-I think of myself
as perfectly normal." Even during the period of time when
she had surgery and treatment, Pat continued to focus on
her goals. During the hardest treatments, she would take
only a few days off, experiencing wonderful support from
her co-workers at Mercyhurst.
Pat's family was very supportive. Her cousin, Tara, a nurse, accompanied her to regular treatments and checkups.
Pat would always dress in business attire, a simple
way of keeping a perspective on her disease. She credits
her quick recovery to a positive attitude and a willingness
to take care of herself. Her outward appearance
demonstrated that she wasn't ready to give up. Her disease
was only one component of her life - it didn't define her!
"Women need to share [their experience] with other women," she commented. And Pat does just that. "When
you experience a difficult time, you can often help others
by sharing it." She encourages women to become more
attuned to their own bodies, stressing the importance of
annual mammograms. Without hers, she might not have
found her cancer early enough for treatment - and
hopefully, cure. Pat also offers a piece of advice to women
who are diagnosed with breast cancer, "You have to go into
this thinking that you will come through it and be well."
With that attitude, Pat continues to live each day fully,
appreciating life and focusing on her goals.
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